We have had the pleasure of getting to spend a day with some pretty special families. Cleo, Hailey, Karmin, and Karim were all born with Angelman Syndrome and their stories and their families are inspiring. We would love to raise some awareness and get some people out to The Walk For Angels on May 6th, 2017 at Emily Murphy Park. To sign up or donate please visit this web page. To learn a little more about what it’s all about check out Kara (mother of Angel Karmin) talking on Global news here.
Here is Alaa (mother of Angel Karim) with some words about the joys and struggles of raising a child with Angelman Syndrome:
Life with Angelman syndrome is unpredictable, to say the least. It definitely has its challenges – the long sleepless nights, constantly needing to be there and monitoring, the unexpected illnesses, seizures (!!!), or just cleaning up after complete destruction. But, it also has its excitements: that moment a long-awaited milestone is reached, the unconditional hug-you-until-you-can’t-breathe-and-lick-your-face love I get from my little boy. The beautiful happy demeanour and uncontrollable laughter (which I don’t think I can go a day without hearing). On days where we think “this is too hard,” or, “I need a break,” a laugh or even a smile from my little boy reminds us all that he’s worth every second.
Here are some highlights from our time spent with these wonderful families.